Resources and Publications

 

A variety of selected publications and literature, tools and resources about self-directed approaches’ history both internationally and nationally, as well as information and practical guides on ‘how to’ for service providers, consumers and their supports.

If you have a publication or document that you would like listed here, please email it to: mharmer@mcm.org.au  please be sure to include a brief summary as well as such information as author(s), publisher, original source, date etc

Available to download NOW!

Literature Review - Word

Literature Review - PDF

Publications

Report on Sector Consultations for Model of Self-Directed Planning

Read More - currently updating

 


 

    Self-Directed Approaches

Self-directed approaches recognise that every person has unique support needs and that they will need different levels of assistance to design and manage their supports. Support Your Way outlines the principles and outcomes of self-directed approaches and promotes a shared responsibility for achieving greater choice for people with a disability.

Support Your Way

Promoting Self Direction and Consumer Control and Home and Community Based Services. Michael Kendrick, Lee Bazanson, Richard Petty, Darrell Jones, 2006.  US

The third paper in a series on ‘Unlocking the code of effective systems change", providing an overview of self directed care, and puts forward recommendations for achieving this in home and community based services. It also focuses on key steps organisations can take to enhance consumer direction within their services.

Kendrick Consulting International

 


 

Personalisation

Personalisation is about starting with the individuals strengths and preferences. It supports the idea that the individual and thier supporters are in the very best place to know what they need and how those needs should be met. From a serivce provider perspective, personalisation means thinking about service provision in a different way – starting with the person and their individual circumstances rather than the service on offer.

"This guide is aimed at frontline practitioners and first-line managers in statutory and independent sector social care services, although it is an indispensable summary for all those interested in this important area." Social Care Institute for Excellence (SCIE) UK

Personalisation - A Rough Guide 

A Personal Approach to Public Services

Commisioning for Personalisation: A Framework for Local Authority Commissioners

      UK Department of Healths framework explores an approach that shapes capacity within communities as well as individual lives,
      empowering individuals to direct their own care in a transparently priced market for personalisation, with information available to make choices.
    
      Commissioning for Personalisation: A Framework for Local Authority Commissioners

 


 

What is Self-Directed Support?

In Control UK have published an easy read booklet answering 'What is Self-Directed Support?'. It outlines 7 steps to take towards being more in control of your supports and checklists to make sure you stay on track along the way.

What is Self -Directed Support

Life and Support Plan - A Guide for the Individual Budget Pilot Series Clarke, S, Sanderson, H, Bamber, C. 2006. UK

A hands on resource to assist the support planning process with clear and easy to understand guidance and instruction. Contains simple and effective tools such as ‘the wheel of life' prompting users to explore key life areas. This booklet breaks down the support planning process to 10 key questions to help individuals think about their lives in a way they may have not have done before. This booklet could be well used by individuals and their supports, planners and case managers through out planning to establish what is working well, what is not working well, goals and associated action plans. The language used through out is generic, so it could be used in a range of planning settings.

 Life and Support Plan (This document is also listed below  in the resource section.)

Creating a Circle of Support Kim Davis, Indiana Institute on Disability and Community, Indiana University 2005

Provides an overview of person centred planning,  and the creation of sustainable circles of support for people with a disability.

Creating a Circle of Support 

 


    Self Directed Funding

Self-Directed Funding, also known as individualized funding, individualized care packages, personalised budgets, individualised support packages, self managed care and direct funding is a choice that has been successfully operating for people with disabilities in Canada, England, Scotland, Ireland, Wales, New Zealand, USA, and is government policy in two states of Australia.

Western Australia have been developing the Local Area Coordination Programme which focuses on personalised support, direct consumer funding, consumer and family empowerment.  (www.disability.wa.gov.au(forindividuals)disabilityservices/lac.html)

New Zealand

Individualised Funding: Guidance and Good Practice. New Zealand Ministry of Health 2003

 Individualised Funding encourages people with disabilities to gain a greater measure of personal independence and play a greater role inthe communities in which they live. New Zealand’s proposed IF does not exclude any disability that is within the present scope of Disability Services. Physical, intellectual and sensory disabilities are all included. For children, or for people with disabilities where there is cognitive impairment, there is the possibility of a parent, guardian or approved carer managing the assessed needs budget on their behalf. There will be provision in the IF programme for the services of independent, appointed advocates for the disabled person to be available.

Field promotes a culture of learning for people with disability, the disability services workforce and the community to create a more inclusive society. On this site there are links to self directed apporaches, forum and training opportunities.

Self Directed Funding

Direct Payments Project

Department of Human Serivces Victoria, 2007. Here you will find an evaluation of the project and reccomendations regarding further expansion of the direct payments option.

Direct Payment Project

Bruce Uditsky is the Executive Director of Alberta Association for Community Living and author of 'The Erosion of Individualized Funding' raises some concerns about Individualized funding,  However, he also comments ‘Individualized funding remains one of the most powerful and enabling means of a greater degree of family empowerment. For this to be maintained, parents and people with disabilities need to understand the value of Individualized funding, the history of human services, how the benefits of Individualized Funding can be applied, the limits of Individualized funding and how to protect Individualized funding.

The Erosion of Individualised Funding

Individualised Funding in Disability Services Carmel Laragy, Department of Human Services, Victoria, 2001.

A paper that reviews individualised funding and the principles of self-determination that underpin it and looks at the extent to which these principles have been applied in a Victorian post-school options program, the Futures for Young Adults.

Individualised Funding in Disability Services

 

 


Self Determination

Self determination is an idea that came from people with disabilities and their families who wanted more control over their supports and services.   The principles of self determination are based around Freedom, Authority, Support, and Responsibility and living life being a valued and contributing member of community.

To illustrate the principles and challenges in ensuring the self determination of individuals with disabiilities, this paper discusses the issues faced by the parents of Shari, an adult with a disability. 

Walking Toward Freedom


What are Microboards?..... Not Something to do with Computers!

A Microboard is formed when a small (micro) group of committed family and friends (board) join with a person with challenges to create a community board. Together this group of people assist the person to plan and achieve their goals, dreams and aspirations in an individual manner. Microboards operate from a philosophy of person centred thinking. Each Microboard is created for the support and empowerment of one person. The Microboard also helps the community to learn and benefit from the person’s contribution.

David and Faye Wetherow created the very first Microboards, and developed Prairie Housing Cooperative (inclusive cooperative housing), L'Avenir Cooperative (a family- and consumer-governed service co-op), the Open Access Resource Centre (a lending library of communications equipment), and some of Canada’s earliest supported employment, individualized funding, and personal support projects.

http://www.communityworks.info/


 

 

 

 

 

 

Resources

A Way with Words 

The way in which we refer to people affects the way they are seen by others and, indeed, how they feel about themselves. The purpose of A way with words is to promote inclusiveness and the fair and accurate portrayal of people with a disability. It is intended as an aid for professional communicators. It provides suggestions for appropriate language, interviewing techniques and media coverage involving people with a disability.  Disability Services Queensland.

Etiquette of Communicating with People with a Disability

Developed by Deb Whitecross this guide will help readers use politically correct language, and provides some useful do's and dont's when it comes to communication.

Hands Off My Plan

This website was planned and is run by people with learning disabilities, and is a great way to have your say and stay in charge.

Individual Support Package Handbook

In the Driving Seat

Top Tips

Life and Support Plan Helen Sanderson Associates Supporting Planning 

National Direct Work force Resource Centre U.S.A

This online resource center provides state Medicaid agencies, researchers, policymakers, employers, consumers, direct service professionals, and other state-level government agencies and organizations easy access to information and resources they may need about the direct service workforce. The Center brings together the nation's premier resources on the topic of the Direct Support Workforce. These resources include web-based clearinghouses, technical experts, training tools and more.

You can search the large resource database for information, resources, policy research and other materials on a variety of topics such recruitment, retention, training, supervision, and consumer direction from leading organizations in the field of direct service workforce policy.

Person Centred Planning in Central Lancashire

A web site detailing the 'how to' of building a Person Centred Plan. Great examples of tools in a user friendly format.

One by One - Victoria

One By One is a family governed arrangement, which was founded in 2000. It aims to support individuals with disabilities to create their own vision for the future based on each person's unique talents, interests and abilities within the community. The activities of One by One are overseen by a Governance Group consisting of family members and independent members of the community. They are supported by a part-time coordinator.

Wikipedia definition of Person Centred Planning

Person centred Planning:  Graphic facilitation (GF)

http://www.loosetooth.com/index.htm

Charlie's Graphics 

Graphic symbols for Person Centred Planning, large gallery of pictures addressing a range of activities, scenarios and concepts. If the site does not have what you are after you can email your request!  


Articles on Graphic Facilitation  

VALID Advocacy

Its all about me and my ISP sessions

Self-directed supports training modules coming soon

www.valid.org.au

 

    

 

 Websites

Circles Network - UK

Communities of Practice - US

Community Resource Unit Inc

Department for Families and Communities: Disability SA - South Australia, Australia

Department of Disability, Ageing and Home Care - NSW, Australia

Department of Families, Housing, Community Services and Indigenous Affairs - Commonwealth, Australia

Department of Health and Families - Northern Territory, Australia

Department of Health and Human Services - Tasmania, Australia

Department of Health and Human Services Office on Disability - United States

Department of Human Services - Victoria, Australia

Disability Services Commission - Western Australia

 

Disability Services Queensland - Queensland, Australia

Field

Helen Sanderson and Associates - UK

 

Human Resources and Skills Development Government of Canada Disability Agenda - Canada  

In Control - Australia

 

In Control - UK

Inclusion Press (Person Centred Planning Tools) - Canada

 

Individualized Funding Coalition for Ontario - Canada

Institute for Community Inclusion - US


Paradigm UK

Social Role Valorisation

Support Planning UK

Valuing People - UK

Vela Microboards - Australia

 


 Want to know more? Click on the graphics below to learn more about the Self- directed Approaches!

 

(Michelle Facilitating the consumer focus group)

 

 


 

 

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